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Coined the "crazy woman's disease" by some of those who have had it--or the "career woman's disease" by those who have attempted to diagnose it--it's been outed by celebrities like Padma Lakshmi, Whoopi Goldberg, Susan Sarandon, and Lena Dunham who have all experienced the effects of it. And if you have a daughter or a niece, the odds are that you know someone with it. Yet it typically takes 8 doctors and 10 years to be properly diagnosed, resulting in years of pain, depression and loss of productivity, often starting in the teen years. Filmmaker Shannon Cohn says after breast cancer, it's "the last great health taboo" and has made a film called "Endo-What?" to change the narrative around Endometriosis and help women and healthcare practitioners understand and treat the disease.
SHANNON COHN